Saturday, March 13, 2010
MRI went as scheduled last week. I called the Dr.'s office on Thursday of this week to get the results, as I didn't hear anything. I spoke to the MA and she looked up the report from the MRI and found everything to be "stable". This is as good of news as we could hope for. Obviously, we would be happier if the LDH levels were in the normal range, but for now we'll wait for the next three month checkup and hope to see a drop to within the normal range.
Thursday, February 25, 2010
MRI is scheduled
We have an appointment for first thing on March 5th for Lola's MRI scan. We have to be at the hospital at 6AM so they can prep her for sedation. The usual no food or drink prior applies, so at least having it this early will help with that!
Tuesday, February 16, 2010
After some time away for the blog it is time for an update. I didn't hurry to post any updates since our last appointment in November, as there wasn't really any alarming news to share. The November appointment consisted of a physical checkup by the doctor and some bloodwork. The bloodwork came back pretty good, with the LDH levels (which, as I understand it, is what is used to measure the cancer levels) reading just a little above normal (normal range being 192 as the high end). Lola's LDH was 194. The doctor felt the level was still a little high from her surgery and felt it would continue to drop. Again, this was back in November.
Today we had another checkup during which the doc felt for any new lumps (he didn't find any--yay) and shared what he felt the next steps were. First he wanted to schedule her for another MRI just for monitoring purposes. He also wanted to get new blood tests done since the LDH level was a little high last time. He explained the MRI would catch anything new, before the blood tests would. This is because a rise in the LDH level is normally a late indicator of any new sarcoma growth. Yet he said he would feel better getting a new blood test that showed the LDH in the complete normal range. I think he felt strongly that this is what we would have seen. Unfortunately, the blood test done today came back with the LDH level a bit higher than last time at 212. For now, we are going to stay the course and have an MRI completed so that we might get a better idea of what is going on.
Not exactly the news we were hoping for. The doctors office is going to get the MRI scheduled and I'll update on any further news as we get it.
Today we had another checkup during which the doc felt for any new lumps (he didn't find any--yay) and shared what he felt the next steps were. First he wanted to schedule her for another MRI just for monitoring purposes. He also wanted to get new blood tests done since the LDH level was a little high last time. He explained the MRI would catch anything new, before the blood tests would. This is because a rise in the LDH level is normally a late indicator of any new sarcoma growth. Yet he said he would feel better getting a new blood test that showed the LDH in the complete normal range. I think he felt strongly that this is what we would have seen. Unfortunately, the blood test done today came back with the LDH level a bit higher than last time at 212. For now, we are going to stay the course and have an MRI completed so that we might get a better idea of what is going on.
Not exactly the news we were hoping for. The doctors office is going to get the MRI scheduled and I'll update on any further news as we get it.
Saturday, November 7, 2009
Next Appointment Coming up
Everything has been going well for Lola. She seems to be one very healthy little girl. Both Haley and I have had the nasty little cold that has been going around and Lola has managed to remain healthy (knock on wood).
As discussed with the Oncologist, we will have regular appointments to monitor Lola to check for any regrowth or new tumors. We have enjoyed the past few months knowing the results of the last test, but our next appointment is coming up on the 17th. For obvious resons there will be a worried feeling deep down until we can get through the next round of tests. I expect the appointment on the 17th to be a physical examination by the Oncologist, checking lymph nodes and perhaps some blood work. Also, from that appointment he will probably schedule a MRI.
We'll continue to post updates here.
As discussed with the Oncologist, we will have regular appointments to monitor Lola to check for any regrowth or new tumors. We have enjoyed the past few months knowing the results of the last test, but our next appointment is coming up on the 17th. For obvious resons there will be a worried feeling deep down until we can get through the next round of tests. I expect the appointment on the 17th to be a physical examination by the Oncologist, checking lymph nodes and perhaps some blood work. Also, from that appointment he will probably schedule a MRI.
We'll continue to post updates here.
Tuesday, September 22, 2009
HUGE HAPPY DANCE!!! We learned today that Lola's CAT Scan and MRI came back 'all clear'!!! Looks like we'll probably be on monitor mode with MRIs every three months for a while, but we can deal with that!!!! The monitoring via regular MRIs is needed just in case there are some cancer cells remaining that could re-grow after a period of time.
For now we are all breathing a big sigh of relief :)
For now we are all breathing a big sigh of relief :)
Thursday, September 17, 2009
Finally, the tests are done`
We made it through until noon with no food or drink (it may have helped that Mick was out of town ;), so we were able to get the tests completed. I have to say that if I had to do it again, I would opt out for the gas mask -- not a peaceful way for a 2 1/2 year old to go to sleep!
We won't know the results until early next week. When we do hear, I'll post here.
We won't know the results until early next week. When we do hear, I'll post here.
Thursday, September 3, 2009
No test today
Grrrrrrr..... you won't believe it. I woke up and fed Lola an early breakfast and prepared myself and her for the morning of no food or drink ahead. We were doing pretty good and around 8:30, I was in the kitchen and Lola was in and out of Mick's office, she and Mick come out into the kitchen and Mick said she got a hold of his bagel and helped herself to a bite of it. That's it, just one bite. I didn't know how big of a deal it was going to be, so we finished our morning and headed over the SJCH. I told them about the 'bite' of bagel and the nurse called over to anesthesiology and we were told that she needed 6 full hours of NO food... not even a bite of anything, due to obvious risks if she were to vomit during sedation, etc.... so no testing today :-( Right now, they couldn't get us on the schedule again until Sept 17th at Noon. The scheduling department is working on trying to get us in at All Children's sooner, but haven't received any confirmation yet. If we can get in over at All Children's sooner, I will consider this one of those "It was meant to be" things.
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